Poem: The true cost of Love 

Would they still call it love if it didn’t hurt so much? Would they still be blissfully unaware if it didn’t sting so suddenly? Would they? Call it love? 

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Sickle Cell Strong

I have really amazing news which I want to share with everyone!

I am one year hospital admissions free! #Sicklestrong

As I am sure you all know I have sickle-cell anaemia an inherited blood disorder. Red blood cells which are round and soft become hard and sickle shaped, this causes a multitude of problems such as painful crisis, organ damage and organ failure, extreme fatigue, strokes, swelling of extremities, bacterial infection and may lead to death.

Through the years I have struggled with having sickle-cell, there has been many ups and downs, bouts of depression in dealing with a life long illness but it has taught me many lessons, some hard but always necessary in making me the person that I am today and despite not realising it at the time I am grateful for everything I have been through.

It is a credit to all I have learnt and the support system around me that has kept me out of hospital this year. In my lifetime there has never been a full year without me being admitted to hospital, every year since I was born I am admitted to hospital five or six times a year from one to six weeks at a time.

I had enough of always being sick and I have tried different things throughout the years. But last year I decided to try something different subtle. I kept meditating, I tried to eat a little healthier but the main thing I have changed is drinking alkaline water. It has revolutionised my life, I drink four litres of it every day and it works! It really works. I am not saying I have not been sick for a year, I still get daily pain, and ‘mini-crisis’ every few months but the really bad crisis that I used to get has gone. I know it is not forever but I have enjoyed a year without once having to deal with that level of pain and I am beyond grateful. I am looking forward to more healthier days ahead.

 

Commentary

Good Evening,

I just want to thank everyone for all their support on Friday, we raised £200 for sickle cell awareness day!

I wasn’t able to post as much as I wanted as everyone was very busy, but I hope you enjoyed the poem I wrote.

As it’s summer, cue the dating season and I will be writing something about it in my next post!

Till then.

 

Sickle Awareness Week: Poem: The Mutant Gene

You were created for aSCD Awareness Ribbon better era.

You once had such pure intentions.

You advocated progress.

You brought instead constraint.

You changed the world forever.

You broke the circle.

You bent what was once whole.

You, my problem, my pain, my DNA, my sickle, my cells.